TY  - JOUR
AU  - Međaković, Jelena
AU  - Čivljak, Antonia
AU  - Zorčec, Tatjana
AU  - Vučić, Vesna
AU  - Ristić-Medić, Danijela
AU  - Veselinović, Aleksandra
AU  - Čivljak, Marta
AU  - Puljak, Livia
PY  - 2024
UR  - http://rimi.imi.bg.ac.rs/handle/123456789/1487
AB  - Background: Parents/caregivers of children with developmental disabilities (CDD) have a wide range of support needs and there are various interventions available. Support, challenges, and needs among parents/caregivers of CDD likely vary in different geographical settings. This study aimed to analyze the perceptions of support, challenges, and needs among parents/caregivers of CDD in Croatia, North Macedonia, and Serbia. Methods: We conducted a cross-sectional study in March-April 2023 within the Erasmus + SynergyEd project. The eligible participants were parents and caregivers of CDD in Croatia, North Macedonia, and Serbia, who filled out a modified Caregiver Needs Survey online. Results: Among 953 participants, 542 (57%) were from Croatia, 205 (21%) were from North Macedonia and 206 (22%) were from Serbia. The most common diagnosis of participants’ children was autism spectrum disorder (26%). The child most often received the first diagnosis at the median of 2 years, diagnosed by a team of professionals. More than half (58%) of children attended preschool and public school, while 22% did not attend any schooling. Additional support from the state/city/county was received by 66% of CDD. Most participants declared not participating in association/organization for family support. Participants mostly (68%) used experts who work with the child as a source of information about their child’s condition, followed by the Internet (53%). In the last 12 months, 60% of participants had difficulties with the availability of services in their area or problems getting appointments. The biggest problem in getting support was ensuring the child’s basic rights were protected. Participants stated that ensuring greater rights for CDD was the greatest need for their families. Conclusion: Parents/caregivers of CDD in Croatia, North Macedonia, and Serbia faced multiple challenges, but most of them were satisfied with the services provided to their children. Future efforts to develop policies and services related to CDD should consider the opinions of their parents/caregivers and disparities in access to services.
PB  - Springer Nature
T2  - BMC Pediatrics
T1  - Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study
IS  - 1
SP  - 297
VL  - 24
DO  - 10.1186/s12887-024-04770-7
ER  - 

@article{
author = "Međaković, Jelena and Čivljak, Antonia and Zorčec, Tatjana and Vučić, Vesna and Ristić-Medić, Danijela and Veselinović, Aleksandra and Čivljak, Marta and Puljak, Livia",
year = "2024",
abstract = "Background: Parents/caregivers of children with developmental disabilities (CDD) have a wide range of support needs and there are various interventions available. Support, challenges, and needs among parents/caregivers of CDD likely vary in different geographical settings. This study aimed to analyze the perceptions of support, challenges, and needs among parents/caregivers of CDD in Croatia, North Macedonia, and Serbia. Methods: We conducted a cross-sectional study in March-April 2023 within the Erasmus + SynergyEd project. The eligible participants were parents and caregivers of CDD in Croatia, North Macedonia, and Serbia, who filled out a modified Caregiver Needs Survey online. Results: Among 953 participants, 542 (57%) were from Croatia, 205 (21%) were from North Macedonia and 206 (22%) were from Serbia. The most common diagnosis of participants’ children was autism spectrum disorder (26%). The child most often received the first diagnosis at the median of 2 years, diagnosed by a team of professionals. More than half (58%) of children attended preschool and public school, while 22% did not attend any schooling. Additional support from the state/city/county was received by 66% of CDD. Most participants declared not participating in association/organization for family support. Participants mostly (68%) used experts who work with the child as a source of information about their child’s condition, followed by the Internet (53%). In the last 12 months, 60% of participants had difficulties with the availability of services in their area or problems getting appointments. The biggest problem in getting support was ensuring the child’s basic rights were protected. Participants stated that ensuring greater rights for CDD was the greatest need for their families. Conclusion: Parents/caregivers of CDD in Croatia, North Macedonia, and Serbia faced multiple challenges, but most of them were satisfied with the services provided to their children. Future efforts to develop policies and services related to CDD should consider the opinions of their parents/caregivers and disparities in access to services.",
publisher = "Springer Nature",
journal = "BMC Pediatrics",
title = "Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study",
number = "1",
pages = "297",
volume = "24",
doi = "10.1186/s12887-024-04770-7"
}

Međaković, J., Čivljak, A., Zorčec, T., Vučić, V., Ristić-Medić, D., Veselinović, A., Čivljak, M.,& Puljak, L.. (2024). Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study. in BMC Pediatrics
Springer Nature., 24(1), 297.
https://doi.org/10.1186/s12887-024-04770-7

Međaković J, Čivljak A, Zorčec T, Vučić V, Ristić-Medić D, Veselinović A, Čivljak M, Puljak L. Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study. in BMC Pediatrics. 2024;24(1):297.
doi:10.1186/s12887-024-04770-7 .

Međaković, Jelena, Čivljak, Antonia, Zorčec, Tatjana, Vučić, Vesna, Ristić-Medić, Danijela, Veselinović, Aleksandra, Čivljak, Marta, Puljak, Livia, "Perceptions on support, challenges and needs among parents and caregivers of children with developmental disabilities in Croatia, North Macedonia and Serbia: a cross-sectional study" in BMC Pediatrics, 24, no. 1 (2024):297,
https://doi.org/10.1186/s12887-024-04770-7 . .

TY  - JOUR
AU  - Nørgaard, Birgitte
AU  - Briel, Matthias
AU  - Chrysostomou, Stavri
AU  - Ristić-Medić, Danijela
AU  - Buttigieg, Sandra C.
AU  - Kiisk, Ele
AU  - Puljak, Livia
AU  - Bała, Małgorzata Maria
AU  - Peričić, Tina Poklepović
AU  - Les̈niak, Wiktoria M.
AU  - Zaja̧c, Joanna F.
AU  - Lund, Hans
AU  - Pieper, Dawid
PY  - 2022
UR  - http://rimi.imi.bg.ac.rs/handle/123456789/1250
AB  - Objectives: This systematic review aimed to identify the characteristics and application of citation analyses in evaluating the justification, design, and placement of the research results of clinical health studies in the context of earlier similar studies. Study Design and Setting: We searched MEDLINE (Ovid), Embase (Ovid), and the Cochrane Methodology Register for meta-research studies. We included meta-research studies assessing whether researchers used earlier similar studies and/or systematic reviews of such studies to inform the justification or design of a new study, whether researchers used systematic reviews to inform the interpretation of new results, and meta-research studies assessing whether redundant studies were published within a specific area. The results are presented as a narrative synthesis. Results: A total of 27 studies were included. How authors of citation analyses define their outcomes appears rather arbitrary, as does how the reference of a landmark review or adherence to reporting guidelines was expected to contribute to the initiation, justification, design, or contextualization of relevant clinical trials. Conclusion: Continued and improved efforts to promote evidence-based research are needed, including clearly defined and justified outcomes in meta-research studies to monitor the implementation of an evidence-based approach.
T2  - Journal of Clinical Epidemiology
T2  - Journal of Clinical EpidemiologyJournal of Clinical Epidemiology
T1  - A systematic review of meta-research studies finds substantial methodological heterogeneity in citation analyses to monitor evidence-based research
EP  - 141
SP  - 126
VL  - 150
DO  - 10.1016/j.jclinepi.2022.06.021
ER  - 

@article{
author = "Nørgaard, Birgitte and Briel, Matthias and Chrysostomou, Stavri and Ristić-Medić, Danijela and Buttigieg, Sandra C. and Kiisk, Ele and Puljak, Livia and Bała, Małgorzata Maria and Peričić, Tina Poklepović and Les̈niak, Wiktoria M. and Zaja̧c, Joanna F. and Lund, Hans and Pieper, Dawid",
year = "2022",
abstract = "Objectives: This systematic review aimed to identify the characteristics and application of citation analyses in evaluating the justification, design, and placement of the research results of clinical health studies in the context of earlier similar studies. Study Design and Setting: We searched MEDLINE (Ovid), Embase (Ovid), and the Cochrane Methodology Register for meta-research studies. We included meta-research studies assessing whether researchers used earlier similar studies and/or systematic reviews of such studies to inform the justification or design of a new study, whether researchers used systematic reviews to inform the interpretation of new results, and meta-research studies assessing whether redundant studies were published within a specific area. The results are presented as a narrative synthesis. Results: A total of 27 studies were included. How authors of citation analyses define their outcomes appears rather arbitrary, as does how the reference of a landmark review or adherence to reporting guidelines was expected to contribute to the initiation, justification, design, or contextualization of relevant clinical trials. Conclusion: Continued and improved efforts to promote evidence-based research are needed, including clearly defined and justified outcomes in meta-research studies to monitor the implementation of an evidence-based approach.",
journal = "Journal of Clinical Epidemiology, Journal of Clinical EpidemiologyJournal of Clinical Epidemiology",
title = "A systematic review of meta-research studies finds substantial methodological heterogeneity in citation analyses to monitor evidence-based research",
pages = "141-126",
volume = "150",
doi = "10.1016/j.jclinepi.2022.06.021"
}

Nørgaard, B., Briel, M., Chrysostomou, S., Ristić-Medić, D., Buttigieg, S. C., Kiisk, E., Puljak, L., Bała, M. M., Peričić, T. P., Les̈niak, W. M., Zaja̧c, J. F., Lund, H.,& Pieper, D.. (2022). A systematic review of meta-research studies finds substantial methodological heterogeneity in citation analyses to monitor evidence-based research. in Journal of Clinical Epidemiology, 150, 126-141.
https://doi.org/10.1016/j.jclinepi.2022.06.021

Nørgaard B, Briel M, Chrysostomou S, Ristić-Medić D, Buttigieg SC, Kiisk E, Puljak L, Bała MM, Peričić TP, Les̈niak WM, Zaja̧c JF, Lund H, Pieper D. A systematic review of meta-research studies finds substantial methodological heterogeneity in citation analyses to monitor evidence-based research. in Journal of Clinical Epidemiology. 2022;150:126-141.
doi:10.1016/j.jclinepi.2022.06.021 .

Nørgaard, Birgitte, Briel, Matthias, Chrysostomou, Stavri, Ristić-Medić, Danijela, Buttigieg, Sandra C., Kiisk, Ele, Puljak, Livia, Bała, Małgorzata Maria, Peričić, Tina Poklepović, Les̈niak, Wiktoria M., Zaja̧c, Joanna F., Lund, Hans, Pieper, Dawid, "A systematic review of meta-research studies finds substantial methodological heterogeneity in citation analyses to monitor evidence-based research" in Journal of Clinical Epidemiology, 150 (2022):126-141,
https://doi.org/10.1016/j.jclinepi.2022.06.021 . .